An Unresolved Drama

Although cancer in children is considered rare, it is the leading cause of death by disease among children in USA


Because One Is Too Many

Despite major treatment advances in recent decades, one in five children with cancer in the US will still not survive


The Cost Of Surviving 

More than 73% will have chronic health problems as a consequence of the treatments they receive


A Worldwide Problem

Childhood cancer does not discriminate. It is estimated that 80% of children diagnosed with cancer reside in developing countries


The causes of most childhood cancers are still not known

Although only five percent of all cancers in children are caused by an inherited mutation, most of them are thought to develop as a result of gene mutations.


However, unlike many cancers in adults, gene mutations in childhood cancers are not strongly linked to life style or environmental factors. 



When a child dies of cancer there are 70 potential life years lost on average compared to 15 potential life years lost for adults





More than 95% of childhood cancer survivors will have a significant health related issue by the time they are 45 years of age



Changes in mood or behavior, depression, anxiety, social isolation, post traumatic stress disorder, and fear of recurrence 



Hearing/vision loss, damage to endocrine system, dental problems, organ damage, musculoskeletal development disorders, secondary cancers, infertility



Changes in attention span, concentration and comprehension, learning disabilities and memory problems, and executive functioning


When a child is diagnosed with cancer, it affects every family member and nearly every aspect of the family’s life


The average family spends 40+ hours per week caring for their child while they are in active treatment


Parents must take time off from work, or in many cases leave their job to care for their child


The diagnosis of a child with cancer often times has a significant negative financial impact upon the family


Siblings of children with cancer are at risk for emotional and behavioral difficulties, such as anxiety, depression, and post traumatic stress disorder


Families often feel that only those who have lived through a similar experience can truly understand the difficulty of the journey


Existing resources are only available during treatment or follow-up visits and
well-intentioned support initiatives by outside organizations are often temporary and insufficient


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